HOUSTON, April 01, 2019 (GLOBE NEWSWIRE) -- EB Research Partnership (EBRP), the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), is pleased to announce the 3rd Annual Believe in Brady event, taking place on Sunday, April 7 at the Levy Park Conservancy from 4-7pm. Beginning in 2017 as a hometown event for a local family, Believe in Brady has become the southern U.S.’s largest fundraiser for this devastating rare skin disease.
Believe in Brady is organized by childhood friends and family of Eileen and Chris Attar to honor their 2-year-old son Brady, who suffers from EB. Last year’s event raised more than $100,000 and 100% of the proceeds benefit EBRP to advance innovative and life-saving treatments.
“Shortly after Brady's birth and diagnosis with EB we knew we wanted to have an annual event in Houston where we could raise awareness and much needed research dollars while giving the community an outlet for showing their love and support for Brady and the Attars'. After doing some research we connected with EBRP and saw an incredible opportunity to raise money on their behalf,” said Believe in Brady Co-Founder Clayton Johnson.
A life-threatening genetic skin disease, it is estimated that 500,000 people worldwide have EB. Children with EB are called “Butterfly Children” because their skin is as fragile as the wings of a butterfly: they face severe pain, open wounds, and a grueling bandaging process on a daily basis. There is currently no treatment or cure for EB, however EBRP is committed to changing that as rapidly as possible.
“We are honored by the support of the Believe in Brady team. Thanks to their leadership they join our research, medical, industry, philanthropic, and patient communities all united to rapidly accelerate much-needed treatments for EB. Leading researchers believe that both life-changing treatments and a cure are within reach and it is dedicated groups like Believe in Brady that will help us reach this goal,” said Michael Hund, Executive Director of EBRP.
This year’s event is back at Levy Park and will include fun for the whole family, food, beer and wine, live music, as well as a silent auction. The event committee hopes to exceed last year’s fundraising and is proud to announce Platinum Sponsor Fibrocell, a cell and gene therapy company working on treatments for EB. The event is all ages and open to the public.
“Even on tough days, we do not lose hope in Brady's future. That is because of EBRP and their passion, motivation and unique vision that we believe will change Brady's life and the many lives of those who suffer daily from this disease,” said Brady’s parents Eileen and Chris Attar. “Not only do we believe that a life-changing treatment will be available in Brady's lifetime, but also that it would absolutely not be possible without EBRP.”
Learn more and purchase tickets at www.ebresearch.org/believe-in-brady
Contact:
EB Research Partnership
Michael Hund, +1-646-844-0902
mhund@ebresearch.org
About EB Research Partnership
Founded by a dedicated group of parents and Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth. EB Research Partnership works to treat and cure EB as quickly and efficiently as possible and fulfills their mission by partnering with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities.
EB Research Partnership utilizes an innovative business model of venture philanthropy, when making a grant to a research project they retain the added upside of generating a recurring revenue stream if the therapy or product is commercially successful, then use the return on investment to fund additional EB research until a cure is found. To learn more about EB Research Partnership visit www.ebresearch.org.