A foundational element of the Raregivers™ Coalition Mental Health & Wellness Program, the Raregivers™ Emotional Journey Map utilizes extensive research from 287 peer-reviewed academic articles, stakeholder reviews, focus groups and data analyst mapping to document a six-stage cycle of hope and grief for rare disease patients, caregivers and the network of professionals working in the field of rare disease.
A foundational element of the Raregivers™ Coalition Mental Health & Wellness Program, the Raregivers™ Emotional Journey Map utilizes extensive research from 287 peer-reviewed academic articles, stakeholder reviews, focus groups and data analyst mapping to document a six-stage cycle of hope and grief for rare disease patients, caregivers and the network of professionals working in the field of rare disease.